Showing posts with label g-tube. Show all posts
Showing posts with label g-tube. Show all posts

Sunday, April 19, 2009

Teela's First Birthday!

Teela is one!! She had her party to celebrate her Birthday, that was on the 15th, on the 18th. Here are a few of my most favorite pictures taken that day. My parents came by and gave her a riding toy. She had a small party. Just a few friends and family showed up. My mother made carrot cake by request...since it was after Easter and I was craving it :) She also brought her yummy lasagna for dinner that night. Teela sure enjoyed herself. She also received a beautiful homemade dress that was made by her Nonnie, Brian's mother.

Earlier that day her Daddy was putting on his boots in the glider chair and Teela came crawling up to him begging for him to pick her up. She loves her Daddy so much! Dadda was one of her first words. Anyway, he held her a little while and then put her in the swing that is suspended from the rail he built for Tatiana's Hopsa Dress. The swing is actually for Tatiana too, but Teela enjoys it more. Teela's baby bungee is also suspended from the rail. The rail spans the length of our whole dining room and half of our living room. We actually sold our kitchen tables because we needed the space. So...I now eat at the kitchen counter. Well, I rarely used the tables anyway for formal dining...never had the time to sit down and eat there as a family. We should have made the time I guess, but it never was a priority with us. The boys were always sitting at their kid table in the kitchen too...although they will be growing to big for that soon.

Anyway...I kinda got off topic a bit (going to again)...probably because I miss my daughter Tatiana and I didn't get to see her this weekend. She is at the Providence Center for Medically Fragile Children right now. She has been there since April 6th. They are supposed to be giving me respite, but I just feel empty without her. She is also there for them to monitor her sodium levels and try to figure out what they can do to make them more stable. She has Diabetes Insipidus and the levels have been crazy for a while and since she has the g-tube for her thirst recognition disorder and now the portacath to take her blood easier we have been monitoring and adjusting her g-tube feedings and Desmopressin practically every day at home since her last discharge from the hospital. If you are new here reading my blog Tatiana has been in and out of the hospital quite a bit in the past two years.

Sunday, March 8, 2009

PakNak Charms Review and Giveaway

"PakNaks are fun soft rubbery 3-D decorations for kids (and adults too!) to personalize all of their stuff. Backpacks, lunchbags, headbands, computer bags, household items, the list is only limited by your imagination."

They have 40+ designs to choose from and each come with a card that has some information about the character you chose. They are interchangeable, collectable, and tradable. They go on extremely easily and are weather resistant so they can be taken anywhere.
I received The Squishes and William to try out and I decided to put them on my daughter, Tatiana's, g-tube pump travel bag to dress it up a bit. It was very plain and even though Tatiana is totally blind she can feel the PakNaks with her fingers because they are 3-D. We went out with it on her wheelchair that was just redone because she had grown out of the seating on it and already and the kids in the neighborhood were asking where she had gotten them. They thought they were really neat.
Win it! Anne at PakNak is generously giving 12 PakNaks away for my blog contest. Three of my readers will win 4 PakNaks each. Considering I only have 2 so far, I envy you :)

Mandatory:
Go to the PakNak website and tell me which 4 PakNak Charms you would love.

Additional entries:
1. Subscribe to my blog by blogger, by email, or both and let me know. (1 extra entry)

2. Blog about this giveaway on your blog and provide me with the link. Make sure you have the link to this post and PakNaks in your blog entry or it won't count. (2 extra entries)

3. Grab My Button - See Sidebar to the right - Leave your link (1 extra entry)

4. Technorati my blog and let me know your link. (1 extra entry)

5. Tweet about this contest on Twitter and leave me your Twitter user name or link. (1 extra entry)

Make sure you leave me your email in all posts so that I can contact you. If you blogged about this leave 2 entries saying you did. This contest ends on Monday March 23, 2009 at midnight (GMT-08:00) Pacific Time (US & Canada).

Also, my friend at Connected2Christ is having a different PakNak contest on her blog too.