Tatiana Nai'a 2004-2010

My beautiful 6 year old daughter passed away Tuesday, April 13, 2010. My family and I are grieving. She was taken from us so suddenly. I find comfort in knowing that she is in heaven no longer restricted by her disabilities she had here on Earth. My once totally blind daughter can now see the heavens and everything around her. She is now able to walk and run, no longer having Cerebral Palsy. She is now free from her many endocrine problems; no longer having to be poked weekly and sometimes daily for blood draws for sodium levels, and nightly for growth hormone. She doesn't have to take medications or be fed her liquids through a g-tube anymore. She is free from her physical trials and families are forever, so we will be reunited someday.

I love her and miss her dearly. Her sweet spirit touched and blessed my life so much. I miss her curly head of red hair and sparkling blue eyes! I have not been able to keep the tears from flowing. Everything of hers reminds me of her and makes me cry again. We now have to make the necessary arrangements for her memorial and go through her many things that need sorting.

I have been blessed with friends and family that are going to be helping with meals, sending flowers and cards and just giving me a shoulder to cry on. To them I wanted to say; thank so much for your support through this difficult time.

Read about my daughter, Tatiana, on my blog HERE. Read about Tatiana on her webpage HERE.

Here is a movie of my daughter, Tatiana (known also as Tati or Boo to many), that I made on June 16th, 2008 when she came home from the hospital. Her endocrine problems (mostly her Diabetes Insipidus...sodium issues) would send her to the hospital often.

She is saying all kinds of things here. This is how I usually was awakened in the morning and lulled off to sleep. Tatiana would become a chatter box pretty darn early and also late at night. It is amazing I got any sleep at all. I loved waking up to her "I love you" or "hug" or "kisses" or her singing one of her favorite songs. I miss this also...



Update April 21, 2010: I have been going through the many pictures I have of Tati and her with family and posting my favorites in my mother's picasa. Go HERE to see them...Just know that this album is not done yet.

Update April 23, 2010: My mother made this memorial picture book to music for Tatiana's Memorial Service which is scheduled to be on Saturday, May 1st, 2010 at my church (Church of JESUS CHRIST of Latter Day Saints) in Rainier, Oregon at 1pm with a luncheon following...



Update April 28, 2010: HERE is Tatiana's Obituary. I wrote it with many tears. Please sign the guest book there or comment on this post to share thoughts or condolences.